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Transitional Age Youth at Parent Information Network


Transition ~

Parents and caregivers of youth between the ages of 14-25 are considered Parents of Transitional Age Youth (PTAY).

WHAT IS TRANSITION?
  Planning For Life

WHAT IS TRANSITION PLANNING?
  Transition Planning
 
Transition Assessment

THE TRANSITION PLAN
  The Transition Plan - IDEA 2004 regulations/MA state special education laws
 
THE PARENT’S ROLE IN TRANSITION PLANNING

CHAPTER  688 REFERRAL/INDIVIDUAL TRANSITION PLAN

SELF-DETERMINATION

POST-SECONDARY EDUCATION

College is an option

 

EMPLOYMENT

hOUSING

SUBSTANCE ABUSE

LEGAL PLANNING

Guardianship

 

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WHAT IS TRANSITION - Planning For Life

Transition to adulthood simply means planning for life. The dictionary defines transition as (n.) a change from one place or state to another. For many of our children, this transition, or changing from one place to another, is not so easy and there are many challenges along the way. It can be the most difficult time in their lives, but with our help and access to the many, many resources available, we can help smooth the transition. Many of these children are not sure what they want to do with the rest of their lives and many parents are not sure how to help them. Transition planning, with the right tools and information, will make the challenge more manageable for youth AND for parents. Though the plan is for their lives, it affects OUR lives just as much. No one knows our kids better than we do, so it is important for families to be actively involved in transition planning. There are many options available to our youth as they plan their lives, and so much that parents can do to help. I hope that you will find the answers to many questions, and many resources and information here on the PTAY website to help you along this journey. So, let’s get started!!

The following are Websites on transition that you might find helpful:

National Secondary Transition Technical Assistance Centerwww.nsttac.org

Links to postsecondary education resources, good information on IDEA 2004 and info specific to individual states

National Center on Secondary Educational and Transition (NCSET)www.ncset.org

Publications, parent briefs, and research on practice briefs

National Center on Youth Transitionwww.cbcs.usf.edu

This site has an extensive collection of web links, e-news, and other publications.

Dare to Dream article www.fyitransition.com

Article on how parents can help youth with self-determination and creating a good transition plan.

National Information for Children and Youth with Disabilitieswww.nichcy.org

Transition resources for parents, topics include health, transition planning, self-determination, SSI and many more.

Great Schoolswww.greatschools.org

Many good articles and links for transition information including an Essential Guide: A Parent’s Guide to Transition to Adulthood and a Timetable for Transition Planning.

Pacer Centerhttp://www.pacer.org/publications/transition.asp

In Transition Section—look under brochures, ADA related links and handouts for good information!

 

Disability Law Center, Inc.  - www.dlc-ma.org/manual/

Planning For Life After Special Education in Massachusetts: A Transition Services Online Manual

Recommended book on Transition available at the PTAY/PIN Resource Library:
"Guiding Your Teenager with Special Needs through the Transition form School to Adult Life" by Mary Korpi


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What is - transition planning?
When children learn to write a story, they ask the questions Who? What? When? Where? Why? How? This helps them to outline their story before they start writing. You can use this same approach to transition planning. These questions will help you to outline what the youth will need to plan for his/her adult life. Youth need to be involved in planning their life, and we need to ask them these questions: Who? What? When? Where? How?

o      Who will help you along the way?

o      What do you want to do with your life?

o      Where do you want to go to school after high school -- College? Vocational school?

o      Or where do you want to work?

o      How will you get there—will you drive a car? Take public transportation?

o      Where do you want to live? Who do you want to live with?

o      What will they do for fun and leisure activities? Who will they spend time with socially?

o      How will they manage their medical needs? Who can help them with this?

o      What do you need to help you with this plan?

o      What agencies will be involved?

o      When will these things happen?

Transition planning is about helping our youth to answer these questions. Their answers to these questions will help to create their transition plan. Some of them may know just what they want to do, but may not be sure about how to make it happen. Some may have no idea what they want to do. Wherever they are right now, it is essential that they be involved in their transition planning. Each student has his/her own unique needs, strengths, interests and ambitions. Below you will find links to resources that have worksheets that will help you to answer many of these questions before you start planning.

The earlier you start with transition planning, the more success you will have. Elementary and middle school are not too early to think about teaching kids things like responsibility, hard work, and speaking up for themselves. Teaching even young children to make decisions, even simple ones to start, and being expected to do chores and help around the house, start them off in the right direction. All of these things will help when they are teenagers and need to plan for that transition to adulthood.

With input from the family, transition planning can make the move from high school to adult life more successful. Who knows this youth better than you do? No one!! You can help answer the questions and put the pieces of the puzzle together to make the transition to adult life happen for your child. Share what you know about your child with everyone involved in the transition planning, even little things that you think may not matter like he loves animals, will help the team get a better picture of your child and make for more successful transition planning.

Transition Planning information online includes:

Transition Planning: A Team Effort, Publication from NICHCY website - http://nichcy.org                                                                  

Adolescent Health Transition Project, Working Together for Successful Transition Notebook -

http://depts.washington.edu/healthtr/notebook/default.html

Transition Coalition - Planning for the Future Workbook

http://transitioncoalition.org/transition/tcfiles/files/docs/planning_future1213214588.pdf/planning_future.pdf

Your Future Now - A Transition Planning and Resource Guide

http://www.mcf.gov.bc.ca/spec_needs/pdf/your_future_now.pdf

Making Action Plans MAPS - http://www.ric.edu/uap/publications/MAPS.pdf

 

Techmatrix - Assistive Technology Tools and Resources for Learning

http://www.techmatrix.org/Infopage?page=Transitioning_with_Technology

 

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What is - transition Assessment?
For those teens that really don’t know what they want to do or need some extra help defining their goals, a transition assessment can help. Transition assessment is an ongoing process of looking at the “abilities, attitudes, aptitudes, interests, work behaviors, levels of self determination and self advocacy skills, interpersonal skills, academic skill level, and independent living skills. . . for the purpose of planning an appropriate individual education program.”1. The transition assessment provides information to the student, as well as parents, teachers, school personnel and others involved in the transition planning process. This will allow the team more information about strengths, preferences and interests, as well as limitations when planning for life after high school. Transition assessments should look at the student in school, at home and in the community. It is just as important through this process to determine what will work, as to determine what will not work for this student. Information will help to define goals and look at whether or not those goals may be realized and will allow the team to adjust and modify accordingly. Maybe the student wants to be an astronaut and after a transition assessment they realize that he does not like to fly, so it is not realistic to think that he will become an astronaut. However, there are other jobs in that field that do not require flying and are more realistic for this student. This will give the team the opportunity to explore some of those other jobs with the student and set goals accordingly.

There are many different types of transition assessments; they may also be called vocational assessments or vocational evaluations. Different types of assessment may include aptitude tests, interest and work inventories, intelligence tests, functional vocational assessments, personality or preference tests, and many others. Transition assessments can be requested through the IEP process. The Mass Rehab Commission also does these with some students who are referred to them.

Websites that have more information about transition assessments include:

Colorado Dept.,  Colorado Dept of Ed Transition tool kit

www.cde.state.co.us

Functional Vocational Evaluation

www.kent.k12.wa.us

Age Appropriate Transition Assessment article - 

www.nsttac.org

 

Age Appropriate Transition Assessment Toolkit

www.nsttac.org/content/age-appropriate-transition-assessment-toolkit

 

Life Skills Inventory: Independent Living Skills Assessment Tool

www.dshs.wa.gov/pdf/ms/forms/10_267.pdf

 

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The Transition Plan - IDEA 2004 regulations/MA state special education laws
Starting at age 14, the school must include a Transition Plan as part of the IEP (IDEA 2004). Working from the vision statement on the IEP, it is important to put goals in place that can be achieved and will allow the student to achieve his/her vision of adult life. The Transition Plan includes school courses to take, employment goals and options, transportation and travel experience, extra curricular and community activities, and other services/agencies involved. “Transition services are required for all students receiving special education services no matter their placement. IDEA 2004 requires appropriate transition planning and services, including a discussion of the anticipated graduation date to be included in the IEP in order for your student to graduate.”

The definition** of Transition under IDEA 2004: Transition planning and the implementation of the transition plan is:
 • Child centered
 • Based on: 
    1.  preferences, choice and vision of adult life
    2.  appropriate assessments
 • A dynamic, creative, and collaborative process
 • Proactive and coordinated


 And is results oriented related to:


 • Education and instruction
 • Community living and recreation
 • Employment (including functional vocational evaluation as needed)
 • Postsecondary education
 • Related services
 • Transportation


 **Federation for Children with Special Needs

Beginning no later than the first IEP developed when the eligible student is 14, the IEP should include a post-school vision statement as well as identify the transition services necessary to support the vision. Transition services are defined by IDEA 2004 as "a coordinated set of activities for a student with a disability that are designed to be a results-oriented process, that is focused on improving academic and functional achievement of the student with a disability to facilitate the students movement from school to post-school activities."

The team must consider the need for transition services and document this discussion. The school district is responsible for maintaining documentation of a full discussion of the student’s transition needs. This documentation must be reviewed and update annually. The IEP should include transition goals that directly link the transition services specified in the transition plan. These goals will be updated annually as the transition plan is updated.

For more information on the transition plan and the IEP visit:

 Federation for Children with Special Needs Website -  http://fcsn.org/pti/topics/transition/index.html

 Massachusetts Department of Education Website -  www.doe.mass.edu/sped/links/transition.html

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The Parent's role in transition planning
Parents need to take an active role in transition planning. There are so many ways that you can be involved and help this process:
 *Communicate with your child. Listen to their hopes, dreams, goals and ideas.
 *Have high expectations for your child—he can do anything he wants to do!
 *Share what you know about your child, no one knows her better than you do! For the transition to be successful, the team needs to understand the child’s interests, strengths and struggles.
 *You need to be a coordinator for this process—that role includes being a case manager, financial planner, advocate and cheerleader.
 *Start the transition process early, but no later than the first IEP after your child turns 14.
 *Encourage your child to participate and be involved! Make sure that he attends all IEP meetings and is included in the transition plan and understands his rights.
 *Remain open and flexible about your child’s transition goals and strategies, while always keeping high expectations.
 *Don’t do for your child what she can do for herself.
 *Help your child to understand his disability.
 *Help your child to become a “self advocate.” Encourage her to speak up for herself and to make decisions.
 *Encourage your child to be independent in all areas of his life—at school, at home, through money management, and in the community.
 *Support your child’s interests and encourage her to try new things.
 *Help your child put together a portfolio of his work—include schoolwork, projects, artwork, clubs/organizations, awards or achievements.
 *Connect with other parents who have transitional age youth.
 *Attend workshops or educational trainings to learn more about transition.

Here are some links to websites with information, advice and helpful hints:

 Ideas for parents to help their children develop the attributes to be successful
 Life Success for Children with Learning Disabilities—Parent Guide -  http://www.ldsuccess.org/parent_guide.html

 National Dropout Prevention Center for Students with Disabilities -  http://www.ndpc-sd.org/

 From pbs.org, Frontline: Inside the Teenage Brain—helpful information for parents
  http://www.pbs.org/wgbh/pages/frontline/shows/teenbrain/
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CHAPTER  688 REFERRAL - Individual Transition Plan
There are two laws that require transition services but they are different. The first is IDEA which requires a transition plan as part of the IEP/special education. As we have already seen this must be a part of the IEP starting at age 14.

The second law that requires transition services is Chapter 688, also referred to as “The Turning 22 Law.” Chapter 688 identifies supports and services that will be needed in the adult services system once the student graduates or turns 22. Graduation terminates special education services and for some young adults there is still a need for support beyond this time; that is where Chapter 688 can help. However, Chapter 688 DOES NOT guarantee adult services. It does guarantee that there will be an Individual Transition Plan or ITP—this is different from the Transition Plan that is part of the IEP. The ITP describes the service needs of the individual and which agencies will provide these services. It is important to remember that Chapter 688 is only a plan and is not a guarantee of services and it is not a continuation of special education services.                                                                                                    

The Chapter 688 referral should be completed by the school two years before graduation. Once this process takes place, the adult agency, along with the student, parents and school personnel, will develop the ITP looking at the specific needs of the student. Services and supports are contingent on the funding of the state agency involved. Going through this process while the student is still in high school allows for advanced planning.

Some links to more information about Chapter 688:

Massachusetts Department of Elementary & Secondary Education Website
A Guide to Chapter 688
http://www.doe.mass.edu/sped/688/

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SELF - DETERMINATION
Self-determination is one of the most important pieces of the transition puzzle. All individuals, regardless of his/her disability, have the right to direct his/her own life. According to the NCSET, “students who have self-determination skills have a stronger chance of being successful in making the transition to adulthood, including employment and independence.”

Self-determination skills include:

o      Self-awareness

o      Self-advocacy

o      Self-confidence

o      Decision making

o      Problem solving

o      Goal setting

o      Risk taking

 

Self-determination skills can and should be a part of the IEP for students as young as elementary school. High school students should have a self-determination goal on their IEP and this should be included in transition planning.

Students need to learn about their disability and how it effects them in all areas of their life—learning, relationships, employment, the community and independent living. They should be encouraged to become aware of their disability and learn to speak up for themselves in all areas of life. This self-awareness is important to becoming a good self-advocate. If the student understands his/her own strengths and limitations, it will allow him/her to identify what he/she needs in the classroom, workplace, community and at home as well.

Parents can support and encourage self-determination in many ways. Help your child to understand his/her disability and to see his/her strengths, interests and needs. Encourage your child to attend and participate in IEP meetings. As parents we need to be open and fully supportive of our child’s ideas, hopes, and dreams. We should also allow them to make choices whenever possible, right or wrong, and allow them to experience the natural consequences of those choices. It is an important part of life to learn by the consequences of our own choices, constantly protecting them from that is not allowing them to learn and grow. Encourage your child to explore many possibilities for his/her life after high school. It is important as parents to promote self-advocacy and encourage our children to speak up for themselves. Once they are old enough, let them speak for themselves whenever the opportunity allows, this will help to facilitate the development of your child’s self-esteem. Also encourage your child to problem solve and set goals; these are both important skills that they will use in all areas of their adult life.


Great Schools
Helping Teens Develop Self-Determination
www.greatschools.org

Self Advocacy
www.heath.gwu.edu

Self-Determination for Postsecondary Students
www.ncset.org/topics/


Self-Determination: Supporting Successful Transition
http://www.ncset.org/publications/viewdesc.asp?id=962


Self-Determination for Middle and High School Students
http://www.ncset.org/topics/sdmhs/default.asp?topic=30

The 411 Disability Disclosure: A Workbook for Youth with Disabilities,
Full text available here:
http://publications.iowa.gov/4778/


Website for youth to checkout, there is also a section for parents:
http://www.youthhood.org/index.asp


National Youth Leadership Network
http://www.nyln.org/

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POST-SECONDARY EDUCATION/EMPLOYMENT
College is an Option

College is not out of the question for most of our children, though we may have to look at options other that traditional four year schools. Community college is a great place for many youth to transition after high school. This may even be a step to a four year school for some youth. The IEP does not follow your son or daughter to college, however accommodations are available, but must be accessed by the student himself. Self-advocacy is an important skill to help them with this process.

It is important to keep in mind that if college is a goal, it should be included on the transition plan from the earliest point, even if the student is not sure, but is thinking about college. Taking the SAT, self-advocacy skills, travel training, and social/emotional needs should be among the goals considered for the student’s IEP to prepare him/her for college.

We have gathered information from many websites and online articles for which the links are included below. There is information on everything from college programs for students with learning challenges, the college application process, accommodations for taking the SAT, and even information about campus life. Click on the links below to find all this information and more.

Going to College--A resource for teens with disabilities                                                                                                                                                           www.going-college.org

 

Teens with LD and/or AD/HD: Shopping for College Options
www.greatschools.net/cgi-bin/showarticle/2976

Article: High School Students with LD and/or AD/HD: Considering College
www.greatschools.net/cgi-bin/showarticle/2975

The Heath Resource Center has many articles related to post-secondary education. Here are just a few. Check out their Websites for many more:   

 

Heath Resource Center--Online Clearing House on post-secondary education for individuals with Disabilities


www.heath.gwu.edu/

College Application Process
www.heath.gwu.edu/modules/college-application-process

Awareness of Postsecondary Options
www.heath.gwu.edu/modules/awareness-of-postsecondary-options

Campus Life/College Living
www.heath.gwu.edu/modules/campus-life-college-living

Community College
www.heath.gwu.edu/modules/community-college

Students with Disabilities in the College Classroom
www.heath.gwu.edu/modules/students-with-disabilities-in-the-college-classroom

Accommodations
www.heath.gwu.edu/modules/accomodations

Who is Responsible for obtaining and paying for testing to document my disability?
www.heath.gwu.edu/modules/who-is-responsible-for-obtaining-and-paying-for-testing-to-document-my-disability

Emotional Supports
www.heath.gwu.edu/modules/emotional-supports

Planning the IEP with a vision towards college from the Federation for Children with
Special Needs:
www.fcsn.org/pti/topics/transition/tools/tips_plan_iep_college.doc

Accommodations when taking the SATs:
www.collegeboard.com/ssd/student/index.html

Colleges with Programs for Learning Disabled Students
www.college-scholarships.com/learning_disabilities.htm

Model college program for students with LD and ADHD:
www.ncset.org/publications/viewdesc.asp?id=1415

Handbook: Opening Doors to Post-Secondary Education & Training
Planning for Life After High School from Wisconsin Schools
www.dpi.state.wi.us/sped/pdf/tranopndrs.pdf

 

Local colleges with support for students with disabilities:

Cape Cod Community College O’Neill Center for Disability Services

The O’Neill Center for Disability Services provides support services to qualified students with disabilities, both in and out of the classroom. The staff works with students that have a wide range of disabilities from the obvious to the hidden.

www.capecod.edu/web/disability

Massasoit Community College LATCH program

LATCH is an academic support program. Although LATCH supports a variety of students, the most common is the first semester student looking for general help adjusting to college and assistance with reading, writing, or math skills specifically. 

http://faculty.massasoit.mass.edu/latch

Bristol Community College

The Office of Disability Services at Bristol Community College provides a full range of advocacy services to a diverse population of students with disabilities. Disability Services provides support services that enable students with disabilities to fully participate in the life of the academic community.

http://www.bristolcc.edu/Students/ods/index.cfm

Curry College PAL program

The PAL program works with students who have a history of academic difficulty.   The focus in PAL is on helping students to discover their own best strategies for academic success based on an understanding of their strengths.

www.curry.edu/programs-and-courses

Landmark College

Landmark College has created a unique learning environment that actively promotes individual success among students who learn differently.  For students with AD/HD, dyslexia and learning disabilities, the mainstream educational system often is unable to meet their needs.  They help students learn in new ways, enabling them to become independent, self-directed learners and self-advocates.  They are the recognized leader in serving the unique needs of students with attention deficit disorders through their curriculum, assistive technology and executive function coaching.

http://www.landmark.edu/

 

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EMPLOYMENT

 

Applying for a Job: The Young Adult's Guide. Download the guide and a sample resume to help your young adult complete job applications.

http://hosted.verticalresponse.com/896899/1c9bb96a00/1746508969/b9f096d2ab/

Supported employment

http://mentalhealth.samsha.gov/cmhs/communitysupport/toolkits/employment/

LD Online Transition: School to Work

http://ldonline.org/indepth/transition

JobTIPS: a free program designed to help individuals with communication, socialization, and learning differences explore career interests, seek and obtain employment, and successfully maintain employment.

http://www.do2learn.com/JobTIPS/index.html

NCWD/Youth is your source for information about employment and youth with disabilities. Our partners - experts in disability, education, employment, and workforce development - strive to ensure you will be provided with the highest quality, most relevant information available.

www.ncwd-youth.info

School Days to Pay Days: An Employment Planning Guide for Families of Young Adults with Intellectual Disabilities

www.communityinclusion.org/schooldays/index.php?p=1

Office of Disability Employment Policy - Disability Policy, employment practices, full inclusion.

www.dol.gov/odep/categories/youth

JAN - The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues.

http://askjan.org/index.html

Work Without Limits - Massachusetts Disability Employment Initiative. A public/private partnership bringing together people with disabilities and their families, policy researchers, policy makers, service planners, employment service providers, employers, and other stakeholders. Our mission is to strengthen the Massachusetts workforce and advance work opportunities for youth and adults with disabilities in Massachusetts.

www.workwithoutlimits.org

America's Career InfoNet - America's Career InfoNet can help you identify options and plan your education.

www.acinet.org

Massachusetts Rehabilitation Commission (MRC) - MRC promotes dignity for individuals with disabilities through employment and independent living in the community.  Local area offices include Brockton, Cape & Islands, Fall River, New Bedford, Plymouth, and Taunton.

www.mass.gov/mrc

 

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HOUSING

When planning for transition one of the things we need to consider is housing. Where does your son/daughter want to live? And whom are they planning to live with? In some cases, staying at home with their parents will work, but this is not always an option. Living on their own may work for some, while others may want to live with roommates, or with other family besides their parents. These are all things that you need to consider with your child. 

For young adults that are planning to live on their own, I am including resources that you will find helpful. Also keep in mind that there is a wait for Housing Choice Vouchers (Section 8 housing vouchers), so it might be something to consider sooner rather than later. You will find more information on that through the links below. 

Housing resources:

Massachusetts Housing Consumer Education Centers

www.masshousinginfo.org

Massachusetts Independent Living Centers

Cape Organization for the Rights of the Disabled
Hyannis MA
508-775-8300
www.cilcapecod.org/

Independence Associates, Inc.
Brockton MA
508-583-2165
www.iacil.org/

Southeast Center for Independent Living
Fall River MA
508-679-9210                                                                                                                                                                                                                                           www.secil.org/

New Bedford MA 
508-994-2040
www.secil.org/


The Tough Stuff

Teenagers are a challenge for parents in any family, but when you have mental illness and/or behavior challenges on top of all that teen life brings with it, the challenge is more intense. Some teens turn to drinking, drugs, or sex to deal with life; others use cutting or self-injury, and for some, there are desperate attempts at suicide. These are all very real issues that teenagers live with every day. Peer pressure and the media, along with online access, make these things more accessible and acceptable. As their parents, we need to help our teens make healthy and responsible choices and get them the help they need when they do not. 

There are no easy answers here, but there are many resources available and a wealth of information at your fingertips here on the web. I will do my best to bring you as much information on these most difficult of teen challenges to you through links and lists of available resources listed here:


SUBSTANCE ABUSE


Many teens and young adults use substances, legal or illegal, to self-medicate. This is a topic that comes up frequently when talking with parents of transitional age youth. I have put together a list of websites with information and education on this, as well as some that can help you to find treatment options for your child and support for parents. 


Information about drugs, alcohol, abuse and prevention:

Higher Education Center for Alcohol and Other Drug Abuse and Violence Prevention
http://higheredcenter.org/

http://www.nbprograms.com/

Massachusetts Substance Abuse Information and Education Helpline
800.327.5050
http://helpline-online.com/index.html

The Anti Drug
http://www.theantidrug.com/resources/

Massachusetts Clearinghouse - Download free materials on health issues including substance abuse
http://www.maclearinghouse.com/

SAMHSA’s National Clearinghouse for Alcohol and Drug information
http://ncadistore.samhsa.gov/

Talk About Addiction
http://talkaboutaddiction.org/


More helpful websites:

http://nida.nih.gov/

http://drugabuse.gov/

http://www.niaaa.nih.gov/

http://addictionrecoveryguide.org/



Ways to access treatment:

The Institute for Health and Recovery 
Helps parents access treatment programs for teens. Call 617.661.3991 or toll free 866.705.2807
Or find more info on the website under “projects” then “treatment access”
http://healthrecovery.org/default.asp



Support for families dealing with substance abuse and addiction:

Learn to Cope - Weekly Support Groups in Brockton
http://learn2cope.org/index.php

MGH: ARMS program has coaching and support for parents and youth. For more information, call 617.643.4699                                                                                       www.additionanswers.com/about-arms/what-is-arms

Groups for youth and families
www.ma-al-anon-alateen.org
www.aa.org

Mass 2-1-1 call center 
Access to statewide community resources call 211 or access on the web at
www.mass211help.org

Partnership for a Drug Free America 
http://www.drugfreeamerica.org

Teens Health website—Drug and Alcohol information
http://kidshealth.org/teen/drug_alcohol/

Resource online for drug tests
http://www.expomed.com/     

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LEGAL PLANNING

Guardianship

The decision as to whether or not to file for guardianship of your young adult is a difficult one.  Our hope is to provide you with information and links to help guide you in making that decision. 

The Massachusetts Guardianship Association website offers helpful information including different types of guardianship as well as alternatives and getting legal help, they also have a Guardianship handbook for families. 

www.massguardianshipassociation.org

 

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